Time & venue: July 29, 6-9 pm

La Jolla Woman's Club   

715 Silverado Street

La Jolla , CA -92037



Title: Chasing Miracles: An Entrepreneur's Journey to Save His Children



Organizer: San Diego TiE (www.sandiego.tie.org)

Speaker: John Crowley, Chairman and CEO of Amicus Therapeutics



Registration & background:

http://sandiego.tie.org/TGS/EM/viewevent/viewEventPT?id_event=4708&from_where=chapter_homepage



http://www.perryspreviews.com/?p=761

(Review of Extradinary Measures by 10-year-old film critic Perry Chen who will interview John Crowley at the event)



Description: John Crowley, Chairman and CEO of Amicus Therapeutics was the inspiration for the major motion picture "Extraordinary Measures" starring Harrison Ford and Brendan Fraser, released in Jan 2010.



In 1998, two of the Crowley's children were diagnosed with Pompe disease, a rare and often fatal neuromuscular disorder with no treatment. Seeking a treatment, he raised venture funding to start a biotech company, later sold it to Genzyme for $137.5 million ‐‐ one of the richest deals ever for a biotech drug untested in humans.  His children were ultimately saved by the new drug, after Crowley battled with many obstacles along the way.



Come hear the rest of John's incredible story of love, entrepreneurialism, and battling bureaucracy.

Additionally, you can learn more about the Crowley family on their web site:  

http://www.crowleyfamily5.com/about.htm